Your health records and data

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In order to provide you with the right health services when you need them, we need to access and share your health records and data in several ways. These are outlined below.

  1. Your GP practice and clinical teams can access your health records to help them provide safe, high quality services more quickly to you.

  2. NHS patients in Leicester, Leicestershire and Rutland (LLR) may be asked for permission to share their medical records when they are referred from one NHS service to another. You can find out more about how they use your data in the leaflet.

  3. Many of the community health services and GP practices in LLR use a computer system called SystmOne – you can choose to share your full records across all healthcare services that use SystmOne, if you consent to do so. This is managed through a programme called Enhanced Data Sharing Model (EDSM) asking patients whether they would like to Share In and/or Share Out their patient record with each health service (that uses SystmOne) that provides them with treatment.

  4. Whether your health care services use SystmOne or not, you can choose to share a summary of your health records (including details of your medication and any allergies) more widely in case you need to be treated by teams from other hospitals or by GPs in other areas of the country while on holiday for example. They will only access your records when it is appropriate to do so. You can find out more about sharing your records through the Enhanced Summary Care Record below. 

  5. If you would like to access your health records please speak to the practice you are registered with and they will talk you through the process. This information may also be available on their websites.

Enhanced Summary Care Record

The NHS is encouraging people living in Leicester, Leicestershire and Rutland to share more information about their health and preferences to help doctors and nurses treat them.

Why you should consent to an ‘Enhanced Summary Care Record’

Consenting to an ‘Enhanced Summary Care Record’ means you can receive better, quicker care if you need to access healthcare away from your usual GP surgery, such as in an emergency, on holiday, when your normal surgery is closed, at hospital clinics, and when visiting a pharmacy.

What you have already…

Most people in England already have a ‘core’ Summary Care Record which makes available limited information from your GP medical record to other health professionals, such as current medications, allergies, and bad reactions to medicines.

What’s so special about an ‘Enhanced Summary Care Record’?

An ‘Enhanced Summary Care Record’ can also include details of illnesses and health problems, past operations and vaccinations, treatment preferences, information about the kind of support needed, and who should be contacted if more information is required.

Download the form now

A form to provide consent for an ‘Enhanced Summary Care Record’ can be downloaded online. The form should be returned to your GP practice.

Further Information:

Information will be managed securely in line with the NHS Care Records Guarantee. The record will only be accessed by health and social care professionals if consent has been provided by the patient, unless they are unconscious or unable to communicate and they believe that accessing the record is in the patient’s best interest.

For more information, including details of how to opt out if you wish, view the NHS Digital website or speak to your GP Practice.

Include links to the docs jennie has sent – info leaflets and forms etc

Permission to share your medical records – Enhanced Data Sharing Model

NHS patients in Leicester, Leicestershire and Rutland may be asked for permission to share their medical records when they are referred from one NHS service to another.

Today, electronic records are kept in all the places where you receive healthcare. These places can usually only share information from your records by letter, email, fax or phone. At times this can slow down your treatment and mean information about you is hard to access.

The services you access, however, may use a unique computer system called SystmOne (dependence on which GP practice you are registered with) that allows the sharing of your medical history and records across different healthcare services. We are telling you about this so you can decide whether you want us to share your full medical record with other NHS services that use SystmOne.

The aim is to enable faster, more connected treatment but it cannot happen without patient consent. Enhanced Data Sharing Model (EDSM) is a new model in which the patient is asked whether they would like to Share In and/or Share Out their patient record at each SystmOne care service that provides them with treatment.

What is SystmOne?

SystmOne is a clinical computer system. It lets NHS staff record patient information securely onto a computer. This information can then be shared with other GPs and health professionals so that everyone caring for the patient is fully informed about their medical history, including medication and allergies. SystmOne is currently used in GP practices, child health services, community services, prisons, hospitals, urgent care, the out of hours service and palliative care services.

How does this work?

Imagine you are receiving care from three different NHS services; a GP, a nurse and a smoking advisor. You want your GP and nurse to share information with each other and you want both of them to know your progress with the smoking advisor. However, you do not want the smoking advisor to see any of your other medical information, so your settings would be:

  • The GP can share information in and out
  • The nurse can share information in and out
  • The smoking advisor can only share information out but not access information about you from your electronic records.

Share In controls whether information that has been made shareable at other NHS care services can be viewed by this care service or not.

Share Out controls whether your information entered at this service can be shared with other NHS services.

When patients next access an NHS service they will be asked whether they consent to the information that is recorded about them is shared with other NHS services via SystmOne; and whether they consent to allow other NHS services to view information about them; providing a two-way communication process.

Even if patients want most of their data to be shared, they will be able to have certain parts of their record marked private by talking to their GP. Equally, patients will have the right to give consent to some providers but not others.

Most patients are already familiar with the sharing of Summary Care Records of essential information such as allergies and medications.